Day 46.

Day 46. Despite not sleeping well, Jack still has two good therapy sessions. That alone shows the distance he’s come.

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Day 45.

Day 45. Lots of progress with practicing eating solids, and bringing food to his mouth. The deficits he has in upper body strength are apparent and it will be one of our biggest goals over the coming weeks.

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Day 43.

Day 43. It was a big day. Great physio session rolling on his own, followed by an important meeting with a team of doctors regarding Jack’s genetic results and therapeutic plan, and an OT session trying out some solids and drinking again.

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Day 42.

Day 42. Jack has therapy in the pool, tries drinking water for the first time since the ICU, and I compare where he’s at to the previous week’s baseline I wrote out for myself.

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Day 35.

Day 35. I feel homesick and impatient for Jack to make a faster recovery. But, he continues to reach for things, become more vocal and manages to turn the pages of his bedtime books.

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Day 32.

Day 32. Jack’s therapists comment on the improvements they’ve noticed, he starts making some new sounds and I give an overview of where he is at compared to a baseline I created a week prior.

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Day 29.

Day 29. Jack’s a mama’s boy today so we survive with a lotta’ coffee and the carrier. He has a great OT session learning to eat again, but the other 3 therapies are a bust. He’s cranky and not interested in therapy. At all.

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