Day 48.

Day 48. Jack has his first day without the NG tube. Temporarily anyways. And Matt and I have started breaking all of our parenting rules.

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Day 47.

Day 47. Jack seems to be showing more expression but we notice that especially when he’s tired he begins to have a difficult time holding himself up in his high chair.

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Day 46.

Day 46. Despite not sleeping well, Jack still has two good therapy sessions. That alone shows the distance he’s come.

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Day 45.

Day 45. Lots of progress with practicing eating solids, and bringing food to his mouth. The deficits he has in upper body strength are apparent and it will be one of our biggest goals over the coming weeks.

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Day 44.

Day 44. Jack has a cold which definitely affects his energy and enthusiasm in therapy. All things considered he is still in good spirits.

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Day 42.

Day 42. Jack has therapy in the pool, tries drinking water for the first time since the ICU, and I compare where he’s at to the previous week’s baseline I wrote out for myself.

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Day 41.

Day 41. Another fun day in town for us. Jack’s much more patient with this recovery than I am and for the first time in 7 weeks Jack gets to sleep without sensors monitoring his vitals. Baby steps every day.

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