Day 49.
Day 49. Jack works on upper body and core strength in all three therapies and makes a fish face.
Read More...Tag: basal ganglia
Day 48.
Day 48. Jack has his first day without the NG tube. Temporarily anyways. And Matt and I have started breaking all of our parenting rules.
Read More...Day 47.
Day 47. Jack seems to be showing more expression but we notice that especially when he’s tired he begins to have a difficult time holding himself up in his high chair.
Read More...Day 45.
Day 45. Lots of progress with practicing eating solids, and bringing food to his mouth. The deficits he has in upper body strength are apparent and it will be one of our biggest goals over the coming weeks.
Read More...Day 44.
Day 44. Jack has a cold which definitely affects his energy and enthusiasm in therapy. All things considered he is still in good spirits.
Read More...Day 43.
Day 43. It was a big day. Great physio session rolling on his own, followed by an important meeting with a team of doctors regarding Jack’s genetic results and therapeutic plan, and an OT session trying out some solids and drinking again.
Read More...Day 42.
Day 42. Jack has therapy in the pool, tries drinking water for the first time since the ICU, and I compare where he’s at to the previous week’s baseline I wrote out for myself.
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The Boy Who Breathed Again 