Day 51.
Day 51. Jack has an EP test which makes Matt and I reflect on the ICU days and also has a solid physio session. Day two with no NG tube!
Read More...Tag: NG tube
Day 50.
Day 50. Jack’s second attempt at a day without an NG tube, and I notice his cognition improving as well.
Read More...Day 49.
Day 49. Jack works on upper body and core strength in all three therapies and makes a fish face.
Read More...Day 48.
Day 48. Jack has his first day without the NG tube. Temporarily anyways. And Matt and I have started breaking all of our parenting rules.
Read More...Day 43.
Day 43. It was a big day. Great physio session rolling on his own, followed by an important meeting with a team of doctors regarding Jack’s genetic results and therapeutic plan, and an OT session trying out some solids and drinking again.
Read More...Day 42.
Day 42. Jack has therapy in the pool, tries drinking water for the first time since the ICU, and I compare where he’s at to the previous week’s baseline I wrote out for myself.
Read More...Day 39.
Day 39. Finally seems like Jack is warming up to his therapies. Which also signals he is feeling less agitated overall. And Jack surprises us by starting to…
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The Boy Who Breathed Again 