Day 43.

Day 43. It was a big day. Great physio session rolling on his own, followed by an important meeting with a team of doctors regarding Jack’s genetic results and therapeutic plan, and an OT session trying out some solids and drinking again.

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Day 42.

Day 42. Jack has therapy in the pool, tries drinking water for the first time since the ICU, and I compare where he’s at to the previous week’s baseline I wrote out for myself.

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Day 40.

Day 40. We play hooky from rehab and Jack does super well on his first real public outing. The sense of normalcy it brings to Matt & I can’t be captured in words. I’ll let the pictures speak for themselves on this one.

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Day 38.

Day 38. Jack’s tummy time is improving but we need to focus on building up his upper body strength and cross-body coordination. His grasp has gotten stronger which is fun because it allows him to actually play. He gets to have both music therapy and a physio session in the pool.

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Day 37.

Day 37. Jack steps up to bat as he always does and wakes up in the greatest mood. He has another EEG, a good physio session and is increasingly vocal.

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Day 36.

Day 36. Jack wakes up cranky and it hits me hard. Jack was always the happiest little kid and his fussiness makes me miss him and his personality so much.

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Day 35.

Day 35. I feel homesick and impatient for Jack to make a faster recovery. But, he continues to reach for things, become more vocal and manages to turn the pages of his bedtime books.

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