Day 43.

Day 43. It was a big day. Great physio session rolling on his own, followed by an important meeting with a team of doctors regarding Jack’s genetic results and therapeutic plan, and an OT session trying out some solids and drinking again.

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Day 42.

Day 42. Jack has therapy in the pool, tries drinking water for the first time since the ICU, and I compare where he’s at to the previous week’s baseline I wrote out for myself.

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Day 41.

Day 41. Another fun day in town for us. Jack’s much more patient with this recovery than I am and for the first time in 7 weeks Jack gets to sleep without sensors monitoring his vitals. Baby steps every day.

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Day 40.

Day 40. We play hooky from rehab and Jack does super well on his first real public outing. The sense of normalcy it brings to Matt & I can’t be captured in words. I’ll let the pictures speak for themselves on this one.

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Day 39.

Day 39. Finally seems like Jack is warming up to his therapies. Which also signals he is feeling less agitated overall. And Jack surprises us by starting to…

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Day 37.

Day 37. Jack steps up to bat as he always does and wakes up in the greatest mood. He has another EEG, a good physio session and is increasingly vocal.

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Day 36.

Day 36. Jack wakes up cranky and it hits me hard. Jack was always the happiest little kid and his fussiness makes me miss him and his personality so much.

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