Whoa. Well today is the day I’ve been waiting for from rehab.
The morning began with Jack’s first assessment from the head pediatric neurologist. The Cole’s Notes version: we have a lot of work ahead of us but the doc sees potential, first insurance-approved timeline is for one month of rehab, he wants to get Jack off the muscle relaxant asap (yay!), we’re going to start additional Physio using a method that will likely be painful for Jack but it’s been found to help patients make the necessary connections to have appropriate motor movements, we’re going to be working on helping Jack rediscover his body and center again given that they are concerned Jack may not be recognizing the left side of his body (although I think it just wasn’t obvious in the exam. I think he does even if we’re still at a newborn level)
Jack’s on nap #3 while I write this, pushing him in the stroller. He tires easily from all his therapies. But, he’s been much more chill and receptive to therapy today.
So far he’s had:
- physio: again even better today than yesterday, the mom of the other boy in Jack’s room was helping distract Jack as the physio worked. Today she focused a lot on sensory stuff with his hands.
- occupational therapy (OT): the therapist is a total sweetheart and it’s essentially a very play-based therapy until we get our new therapist for help with eating
- speech therapy: again very sensory, hands, mouth and neck related massage. Unfortunately it was scheduled right after OT so he was too tired.
We’ve now gone for a walk while he naps and the therapist will come back in 15 to try again.
-update: speech therapy went not sooo great but we’ve noticed a pattern. With every new therapist, he definitely doesn’t like it the first time and then he seems to get better the next time. So hopefully tomorrow will be better.
Overall Jack seemed more relaxed today and much more receptive to all sorts of things although less smiley. Now we’ve reached the “gruffalo hours” when we just try and keep him entertained until bath and bed!