Tag: autoimmune neurological disorder

Results.

Results are in! We hear back from the biomedical/genetics team at BC Children’s Hospital about Jack’s exome sequencing.

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Days 54-56. Long Weekend Update.

Days 54-56. Spent the weekend mostly in Dresden with mom while Matt was in Hamburg. I’m finding it hard to keep my patience in check when I just want to see our little boy crawl again.

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Day 43.

Day 43. It was a big day. Great physio session rolling on his own, followed by an important meeting with a team of doctors regarding Jack’s genetic results and therapeutic plan, and an OT session trying out some solids and drinking again.

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